Perspective

Europe Trip 2015

Hey Guys!

Sorry I have been so MIA things have been going extremely well and exciting. Looking forward to sharing the past few months with you.

As I mentioned, in my last few post’s I was working with a acupuncturist and hypnotherapist as well as a chiropractor to get my body balanced and back on track before flying! I also paid my rheumatologist and cardiologist a visit before leaving for Europe to get the final go ahead. I have been wonderfully healthy and completely on track! Still having fatigue and pain when I get my period but NOTHING like the POTs symptoms I would get a year ago!

Leaving for my trip I was very nervous and just worried about leaving my team of medical professional back here in the US. My cardiologist gave me everything I needed “just in case” I have any major heart tacarcadia situations over seas. He also provided me a list of Doctors in Switzerland and Italy. That gave me major relief and peace of mind.

On to the trip, flying that far was nerveracking but worth it. My husband and I kept ourselves busy by watching the entire 2 first seasons of Ray Donavon! We are hooked and it was the perfect thing to do to keep my mind busy! With my doctors advice we spit the trip up and had a layover in Canada and then off to Geneva from Canada for another 7 hour flight or so. I had my compression stockings and did wear those for the second leg of the flight to Geneva. We landed and everything was wonderful! I felt great and we were so excited to check into our hotel. Geneva was amazingly beautiful, clean and peaceful! The shopping was amazing and Lake Geneva was surrounded by amazing castles and stunning homes. We loved the first few days there!

Geneva

After spending time in Geneva we took our car on a road trip up to the Swiss Alpes to Zermatt. I think this was my favorite place we visited the whole 2 weeks we were in Europe. It was truly stunning and such a beautiful, fun town. Seeing the Matterhorn was spectacular and way better then the Disneyland verison…hahahah! Our hotel was AMAZING! Or room overlooked all of Zermatt, the mountains and the town. Our room was as if we were in a little glass box! Windows surrounded us and the view was beautiful!

IMG_4773

 

IMG_4783

IMG_4747

After going to Zermatt we continued our adventures to Montreux, it was absolutely stunning and so was our stay at the Fairmont Le Montreux Palace. One of the most amazing hotels we have ever stayed in! In Montreux we visited the chillon castle and walked all along the lake enjoying the town, food and wine!

IMG_5031

IMG_5020

IMG_5030

From Montreux we finally made it to Italy- Venice, Florence/Tuscany, Cinque Terre and Rome. All together Italy was absolutely amazing. The food was to die for! Our whole trip consisted of walking, eating, sightseeing and more eating… It is hard to pick a favorite place in Italy because all of them were so wonderful. We dream about going back and spending weeks just in Italy exploring. Never enough time to see everything on vacation…I keep wanting to pick which city in Italy was my favorite but all of them were so fun and exciting I cant seem to choose..

IMG_5195
IMG_5320

IMG_5366

IMG_5161

IMG_5375We made it back safe and all in one piece with so many memories together that we will cherish forever.

Recovering from heat stroke and eventually ending up with Pots has been tone of the most life changing events in my life. I have learned to not take anything for granted, material stuff doesn’t mean everything, and being healthy and having someone to spend my life adventures with it truly the only thing that matters. I can honestly say I live my life now not in fear (well sometimes, if you ask Tyler) but to take more chances, go on more adventures, do what I want to do, don’t let people or work stress you out to much! You only live once and you never know what twists and turns your life will take. For all my potsie friends still recovering, know you will get better and you can do anything you train your mind and body to do!

 

 

 

 

Perspective

Update July 2015

Lots of fun and exciting stuff going on these past few weeks.

First off, my new business Polished Staging is officially up and running, we have been so busy and have made some wonderful contacts. Staged 2 homes in 2 weeks and they both sold the first day on the market, one highest price in the neighborhood and one with 6 offers! This makes the blood, sweat and tears totally worth it! Not to mention we have so many brokers calling to want us to stage their listings. We feel so happy and blessed! 

Personally,  my health has been great! Working out and pushing myself again has been wonderful. I started with my trainer Marisol and now picked up Orange Theory! First few classes have been a struggle and I became dehydrated and blood pressure dropped but I’m staying extra hydrated and increased my salt intake…even doing a dreaded glass of salt water after working out… but whatever works right! 

Acupuncture has still been working wonders! Loving my appointments with life coaching and acupuncture. My coach has been such a great person to talk with and come up with positive life plans and goals. It seems to keep me balanced and relaxed! 

Hypnotherapy has come to an end and I have to say the overall experience has been worth it! I fly in a few weeks so we will how much it has helped with my anxiety. 

Over all Ive been keeping up with my workouts and haven’t had any major set backs! Knock on wood! 

So happy to be back! 

Perspective

4th weekend 2015!

So excited to share all my mast cell blood work came back negative! very grateful. I assumed it would considering I was back to normal after a week of weird symptoms.

Hope everyone have a great 4th! My family came to town to visit with us we had a wonderful time! Last year I could barely function. I was so sick still and couldn’t handle anything especially the heat, the sun, foods, you name it I couldn’t handle it.

This year was awesome, I went to an early morning parade in my neighborhood, drank a little wine at the pool in the heat and sun with some of our neighborhood friends, (with a million glasses of water of course) and ate BBQ. (I even had gluten and a little cheese).I didn’t even think about being “sick” or any symptoms. It was great to feel back to normal… 

In the recent months I have been trying to get my business Polished Staging off the ground. It has been wonderful and such a success so far! My business partners and I set everything up, got our inventory and have a warehouse full of furniture. Our current project is a 4300 sq ft. home in a beautiful gated community! I can’t wait to post before and after photos! It has been such an amazing and fun learning experience and I am so blessed to be able to own my own businesses. Hard work does pay off!

In the coming months and weeks I am working hard to stay fit, stay healthy and strong and kick some ass in the business world! I can’t stress enough following your passion in key to a healthy life!

2 months until we travel to Europe for our huge vacation and I seriously am so excited! Every city and hotel is seriously my dream! Looking forward to sharing my experience with you!

 

 

Perspective

6/24 week

Hey Guys, 

Had a great weekend and feeling back to normal again! yay! Been pushing myself way to hard with running and working out (trying to get back in shape!). Blood pressure and heart rate has been low, per my usual but trying to listen to my body and rest when needed. 

This weekend, Tyler and I had a much needed date day in La Jolla. It was beautiful! Love our day dates! 

daydate!

As far as my updates still waiting on 2 more tests for mast cell, as of now all test have come back negative! yay. Looks like I may have been having some sort of extreme heart burn or indigestion.. who knows… always something right…

I have been chatting with Dr. Treyzon and a few more of my specialists and they made sure to remind me to not pursue the route of Lyme, all my tests were clearly negative (3- including the most accurate one by Igenex) and there is absolutely no need to be chasing a ghost…They all had to remind me that I am better and that doesn’t just happen if a bacterial infection or lyme is present. 

I am still working with my amazing life coach an acupuncturist Courtney O’Brien, she has been guiding me and helping me understand how to move forward and not live in fear about going backwards. We have had some amazing progress and I absolutely would recommend acupuncture and any therapy or coaching to anyone who has suffered an extreme health related illness or trama.

acupuncture

Heat is still a huge deal for me, but I am managing and making sure I stay extra hydrated and and cool throughout the day.

On a positive note my new business is getting off the ground and I couldn’t be more excited! I will share more soon when everything is finalized! Big meetings today!

Thanks for all the emails, and texts!  so amazing to have such a great community of Potsies! 

 

 

 

Perspective

Update x’s 5

Okay so sorry I’ve been MIA lately! I have befriended a few more girls suffering from POTs and have been extremely down myself… Ive been chatting with my new friends and dealing with more of my own issues! nooooooooo!!!! 5 months doing amazing then had a minor set back and a few bumps in the road the past few weeks…. Here’s my update. 

My hubby and I finally planned an awesome trip for this year September. 2 weeks in Europe-Switzerland and Italy…(My dream). I keep telling myself no matter what I WILL make this trip happen! so that the exciting good news! 

Bad news is a few weeks back after my wine tasting weekend I stated getting a swollen/hard to swallow feeling in my throat. Kinda started freaking me out, was coming and going but mostly happening after eating then started happening all the time… My lifesaver Dr. Treyzon, GI specialist told me to head to an allergist in my area asap. (since he works in LA, 3 hours away from me). I went to the allergist to make sure I wasn’t having any crazy reaction to anything and did some scratch testing to make sure. (Picture below). Everything came back normal but I did get new info on possibly having Mast Cell Disorder. A week later I went to Cedars for a visit with Dr. Treyzon and he recommended I see and ENT real quick to make sure my throat wasn’t really closing up. The ENT scoped my throat in the  office within 10 mins and said I was only 20% swollen (normal) could have been from any environmental allergy? who knows, but nothing dangerous or anything she could think of but she did prescribe an Epipen to be safe! -makes me feel better.. 

4 hours at the doctor yesterday figuring out my allergies. #nofun at least I also was able to get acupuncture. Allergy test revealed I do not have anaphylaxis to any foods. They did find I am EXTREMELY allergic to cats.  (which I kinda already knew) catch my story on my blog later this afternoon. {web address in profile} #allergies #allergic #sandiegoliving #sandiegoblogger #instagood #follow #followme #photooftheday #happy #tagforlikes #sandiegoblogger #scrippshealth

I am going Friday for more blood work to rule out mast cell. My GI specialist says it is rare and he does not think that is the case but we will test anyways…Crossing my fingers Im just having reflex  or something simple…. I just feel like it never ends….

(I also wanted to mention on a side note-I love support groups but a few I am part of have been making me even more anxious then I need to be. Everyone is so quick to instill fear and worry in others because of their own experiences I sometimes think its to overwhelming. Pick and choose carefully fear it not helping anyone).

Speaking of support groups, I am part of a lyme disease support group because of my mother-in-law and because I have been through the Igenex testing myself. Up until this point I have been under the impression that my lyme panel was negative-(Read by 3 doctors)..then on the lyme “support” page another member posted her results, which happened to be identical to mine with comments saying the person had lyme… I made an appointment with a LLMD and went to see her yesterday. Turns out my results are inconclusive (But also negative by standards, which I am still trying to figure out what this means…). I will be doing more testing for co-infections, bacterial infections and mold infections. I am thinking about taking natural supplements just in case I need to kill off anything in my body that shouldn’t be there… but I need more information so I guess, we will see what happens next…

During all this my stress levels have been through the roof and finding a way to meditate and just think clear has been difficult. I decided to start working on myself and see a life coach, acupuncturist and hypnotherapist. I am absolutely loving my acupuncture! It has been helping me destress and stay calm! (and my insurance covers it!) Life coaching has been an awesome way to start looking a my future in a more positive way, learning how to overcome my fears and anxiety of “going backwards”. 

I have to say Hypnotherapy has been wonderful as well! If you are willing to try it, be sure to have an extremely open mind, and ready & willing to change! Lucky for me I get to see one of CA’s best hypnotherapists. She is working me on anxiety and fears of the “what ifs” of my life & my visions of living more positive. She is also helping me over-come my fear of flying, this way  I will be able to enjoye the long flight over seas for our next big adventure! 

Like I said, I feel like it never ends and you need to fight everyday to feel good. When I’m good, I’m great and when I’m not feeling good, I’m really not feeling good…(I actually kinda laugh to myself when people complain about feeling sick or off….if they only really knew what we POTSIES deal with on a daily basis)…I just hope I can get a definite answer to figure out what the hell happened to me and what I need to do to move forward in life…I just hope I can stop searching soon,  as I feel like Im chasing a ghost. Hoping my doctors hang in there with me too and don’t give up…Its hard to constantly feel like your annoying doctors on a daily basis… being persistent and strong is hard! but you just gotta keep on keepin on….

Recipes

Catie’s Pasta Salad

Catie’s pasta salad recipe

Catie's Pasta Salad

Here is a guest post from one of my best friends Catie! Amazing, easy go to recipe! Some ingredients are optional! Feel free to make according to your special diet needs.

1 bag of gluten free pasta (any type or kind will work)

1 small jar of sun dried tomatoes in oil (trader joes) squeeze out access oil.

1 small can of sliced black olives

1 can of artichokes (chopped)

1 bag of broccoli

1/4 of Newmans Italian dressing (you can use more or less)

Lots of Parmesan cheese (Optional: I use a Romano blend)

Once the Pasta is cooked according to package directions, combine all ingredients together!

Viola!

Perspective

How comfortable is to comfortable?

IMG_3940

These past two weeks have been crazy busy! I have become almost myself again, minus my fear which I am still working on. 🙁

On memorial day weekend Tyler and I stayed home, and attended the memorial day party at our neighborhood park! It was catered by Phil’s BBQ. Delicious but I’m not sure the BBQ sauce was gluten free….(Funny, I was actually called out by another neighbor that I wasn’t sticking to my “diet”, funny thing is, not sure if he ever even read my blog or even know what kind of “diet” I follow..). Hello people its not a diet, its a lifestyle…. Gluten and Dairy free…. plus I only ate the tri-tip and chicken. well….I also had a bite of coleslaw and beans, bit nothing crazy. I mean I can’t be perfect with my diet all the time… which brings me to a very good point, how comfortable is to comfortable? Now that I am healing back to normal and somewhat better I’ve been sliding on my diet…. and boy have I felt the difference. 

This past weekend I hosted my family at my house for the balloon and wine festival out in Temecula. I had wine, broke my diet (ate bread with dinner) and was in the sun a majority of the day. I developed a heat rash and had to leave the balloon festival early. Once we left the balloon festival, we made our way to a few indoor wineries and had a delicious dinner. Everything was fine until the next morning at breakfast. (Sunday). I had half a cup of decaf coffee with  almond milk and the feeling like my throat was closing up suddenly happened all over again….haven’t had that since Oct 2014…. It stuck with me throughout the day and got better at night. Now Monday, I had my normal diet, green smoothie for breakfast and veggie soup for lunch and within an hour of eating I have the throat swelling feeling again! what a nightmare! I just put a call into my GI doctor and will be having a phone appointment soon. 

This all brings me back to a point of knowing when and when not to push myself. I can’t help but realize that everything I do needs to be modified for my “new” life…. Its so annoying and hard to understand but I guess when I feel good in order to stay that way I need to stay 100% on track. 

Not pushing myself is the hardest thing ever….

 

Perspective

Overview POTs Syndrome

Hey Guys!

I found a few informative videos on POTs and thought I would share for an easy understanding. To read more about my specific journey and how I developed POTs read My 11 Month Journey 

I am so thankful that my syndrome is fully under control and I am no longer on medication. (5 Months from any major episodes or hospital visits!)

My blood pressure it back to normal (Low-normal but normal) and I am working my ass off to get back in shape, all well feeling extremely bloated from the amount of salt I have to eat! (I am finally starting to actually like salt, and let me tell you, that has been a challenge in itself!). I am still extremely fatigued some days but seem to be able to push through and make the most out of everyday! 

Here is a longer video but I great explanation on what POTs is, hope you have 45 mins to watch! 

Here is a short and sweet overview of POTs

Dummy POTs Video, Pretty Hilarious, and the best video yet! (I am back to a normal weight and actually trying to get back in shape, go figure). LOL But this is a pretty good example of what its like to talk with most about POTs. 

Recipes

Pork Roast with Rosemary, Garlic and Dijon Glaze.

Pork Roast with a creamy Rosemary, Garlic and Dijon glaze

Pork Roast with a creamy Rosemary, Garlic and Dijon glaze

2 1/2 pound boneless pork shoulder (organic, I went with a small pork shoulder)

2 tablespoons finely chopped fresh rosemary

4 cloves garlic

4 teaspoons kosher salt

1/4 cup extra virgin olive oil

1 1/2 tablespoons Dijon mustard

1 tablespoon freshly ground black pepper

Cut away skin from the pork shoulder, leaving a 1/8-inch layer of fat.

Chop rosemary. Using a mortar and pestle or flat side of a knife, mash together garlic and salt to form a paste.

In a bowl combine garlic paste, olive oil, rosemary, mustard, and black pepper. Rub mixture all over pork and transfer to roasting pan.

Preheat oven to 350 and let pork come to room temperature.

Place pork in pan and roast on each side for 3 min or until golden brown. Transfer to oven and cook until meat is tender (reaches 180 on a meat thermometer), 1 hour or so. Let rest 10 minutes before slicing and serving.

*Serve Pork with a little side of applesauce. 

Herbed Basmati Rice

2 tablespoons minced fresh parsley

1 tablespoon minced fresh dill

1 tablespoon minced fresh scallions

1 cup uncooked long-grain basmati rice

1 3/4 cups water

sea salt and black pepper, to taste

1 tablespoon olive oil

Chop parsley, dill, and scallions.

 

Combine in saucepan: rice, 1 3/4 cups water, salt, and olive oil. Bring to boil over high heat. Reduce heat to low, stir once, and simmer, covered tightly, for 15 minutes.

Turn off heat and allow rice to sit covered for 5 minutes. Add parsley, dill, scallions, and pepper. Fluff with a fork, and serve warm.

Sugar Snap Peas

1 1/2 cups fresh sugar snap peas, end removed

1 tablespoon extra virgin olive oil

sea salt and black pepper, to taste

Remove and discard the stem end and string from each sugar snap pod.

Heat oil, add snap peas, salt and pepper.

Sauté, stirring, for 2-3 minutes.

 website: www.gatheredtable.com

Recipes

Tex-Mex Turkey Burgers

11325036_888555264540789_1184992050_n

I decided to sign up for Gathered Table today to get some new amazing recipes. wow, I am so pleasantly surprised by how easy and awesome this site is! This is my first week trying their recipes! I will rate them and let you know how worth the membership is! First month is free so we will see what happens. 

 Tex-Mex Turkey Burgers 

4 out of 5 starts! (and Husband approved)

1 cup fresh cilantro, finely chopped

2 (4 oz.) cans diced green chiles, drained

1 pound ground turkey

2 teaspoons cumin

1 teaspoon chili powder

1 teaspoon sea salt

3 teaspoon olive oil 

 Chop cilantro and onion. Mix everything together in a medium sized bowl. Form into burgers. Heat oil in a skillet over medium high heat. Place burgers in skillet and cook to desired doneness, about 7 minutes per side.

**I made these burgers with sweet potato fries and garlicky spinach. 

 Recipe from my new favorite website: www.gatheredtable.com